Welcome to our Blog

Thoughts from staff, young people and family members. We’re covering a range of topics that we think you’ll find useful, plus inspiring stories and topics we’re really passionate about. You can find out more about what we do as a local charity children’s hospice – and current research and up to date advice.

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Summer with her family in the countryside

"You're not taught to be a parent. So you're definitely not taught to be a parent of a dying child."

"I remember our first visit like it was yesterday. Everyone was so friendly, and the facilities were amazing. All the other children and families looked happy, and no one was treated any differently."

"Before Chestnut Tree House, there was no one else who could look after Nora when she’s not at school. It’s not fair to leave her with family members because she needs constant care."

Emma, the family's Chestnut nurse, with Nellie

"I feel a great duty to giving her the most beautiful, joyful, normal life. A life filled with love and adventure. And with the help our local children’s hospice, Chestnut Tree House, we can do just that."

Montage images of Tyler. In the hospice with a tube in his nose (left) and outdoors having fun with llamas (right)

"Our family needs support we can rely on. And like every family, we need fun too. Chestnut makes both possible."

Jacob has lots of complex medical needs - he loves spending time outdoors and splashing around in the swimming pool, His Mum tells us all about their life.

"The team at Chestnut Tree House are brilliant and they need all of the help and support that they can get so they can continue doing what they do for families like us. I don’t know what we would do without them."

Mikey was just nine-months old when he was fitted with a tracheostomy to help him breathe. His condition is so complex that he's the only one in the world with his condition - Mum, Chevonne gives us a glimpse into their life.

"Chestnut consistently put the child first to make sure they can have a childhood that, although vastly different from their peers, offers them the chance to experience the same joys and little things in life that is all part of growing up."

Get to know Maisy-Leigh and her family. Mum Hayleigh gives us a glimpse into their lives together and how Maisy-Leigh's rare genetic condition shapes their lives.

Gracie and family at the House with a llama

Gracie has epilepsy and a rare disorder called Cardiofaciocutaneous Syndrome. Her mum, Aly, shares what it's like living with both.

Image of Zac in his wheelchair on a special swing

Our family stories

Read our family stories to see how Chestnut Tree House has impacted the lives of so many. All have come directly from our wonderful families who have shared their experience of caring for a child with a life-limiting illness.

Family stories

Get to know more about us:

We provide hospice services to children and young people across East and West Sussex and South East Hampshire. Every year we support 300 children with life-limiting conditions to live their lives to the fullest. From day trips out and activities at the House, specialist care in their own homes and providing families with short breaks and support.

If you’d like to support us to help us continue to provide our services, care and support for children and families who know they don’t have long together then there’s a few ways you can get involved:

Fundraise! We’ve got lots of helpful hints and top tips for you to put on your own fundraising event.
Join an event. From marathon runs, overseas treks and daring abseils… take on a personal challenge while raising money.
Make a donation. We need almost £6 million every year to provide hospice care for local children and their families, with only a small amount of this coming from central government. Without your incredible help we wouldn’t be able to continue to support children with life-threatening and life-limiting illnesses.

Welcome to our Blog

Our family stories

Get to know more about us:

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