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Welcome to our Blog

Thoughts from staff, young people and family members. We’re covering a range of topics that we think you’ll find useful, plus inspiring stories and topics we’re really passionate about. You can find out more about what we do as a local charity children’s hospice – and current research and up to date advice.

12 results
Summer with her family in the countryside
Summer’s story
"You're not taught to be a parent. So you're definitely not taught to be a parent of a dying child."
Image of a montage of chestnut tree image with our 21 anniversary logo on it - reading: 21 years of care for children and families
Our 21st Anniversary
This year is a very special year in the history of Chestnut Tree House, as throughout 2024, we will be marking 21 years since we opened our doors.
Image of Jess and her mum
Jess’s story
"I remember our first visit like it was yesterday. Everyone was so friendly, and the facilities were amazing. All the other children and families looked happy, and no one was treated any differently."
Nora and family out and about
Nora’s story
"Before Chestnut Tree House, there was no one else who could look after Nora when she’s not at school. It’s not fair to leave her with family members because she needs constant care."
Image of a child hugging an adult
How to support a grieving child
We want to reassure parents that every person’s grief is individual and unique. There is no right or wrong way of reacting to a sad event. But we also try to encourage parents to be open and honest with their child.
Image of a Nurse holding hands with a parent
Supporting families after the death of a child
Meet Claire, whose role involves helping parents and carers when they experience a bereavement and helping the whole family through the emotional impact of the death of a child.
Emma, the family's Chestnut nurse, with Nellie
Nellie’s story
"I feel a great duty to giving her the most beautiful, joyful, normal life. A life filled with love and adventure. And with the help our local children’s hospice, Chestnut Tree House, we can do just that."
Montage images of Tyler. In the hospice with a tube in his nose (left) and outdoors having fun with llamas (right)
Tyler’s story
"Our family needs support we can rely on. And like every family, we need fun too. Chestnut makes both possible."
Care support worker looking happy
What does a Nurse Associate do?
We catch up with Rachel who's worked at the hospice for over 14 years. She tells us everything you wanted to know about the role of a Care Support Worker at a children’s hospice.
Jacob and nurses at the hospice
Jacob’s story
Jacob has lots of complex medical needs - he loves spending time outdoors and splashing around in the swimming pool, His Mum tells us all about their life.
Sibling event in the woodland
Why all children benefit from making dens
Elaine, Activity Co-Ordinator, gives us a fascinating insight into the importance of making dens for children with life-limiting illnesses and their siblings. How this form of playing helps build self-esteem and their imagination.
Two women tightly holding hands on couch at home close-up
How couple’s therapy can help the whole family
Parenting can take a toll on any relationship. But when you have a child with a life-limiting condition, everyday stresses such as managing finances are magnified and supplemented by extra pressures.
Image of Zac in his wheelchair on a special swing

Our family stories

Read our family stories to see how Chestnut Tree House has impacted the lives of so many. All have come directly from our wonderful families who have shared their experience of caring for a child with a life-limiting illness.

Family stories

Get to know more about us:

We provide hospice services to children and young people across East and West Sussex and South East Hampshire. Every year we support 300 children with life-limiting conditions to live their lives to the fullest. From day trips out and activities at the House, specialist care in their own homes and providing families with short breaks and support.

If you’d like to support us to help us continue to provide our services, care and support for children and families who know they don’t have long together then there’s a few ways you can get involved:

  • Fundraise! We’ve got lots of helpful hints and top tips for you to put on your own fundraising event.
  • Join an event. From marathon runs, overseas treks and daring abseils… take on a personal challenge while raising money.
  • Make a donation. We need almost £6 million every year to provide hospice care for local children and their families, with only a small amount of this coming from central government. Without your incredible help we wouldn’t be able to continue to support children with life-threatening and life-limiting illnesses.

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