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Frequently Asked Questions

Here are Chestnut Tree House children’s hospice Frequently Asked Questions about what we do, the support for children and families we offer, and how we help.


Who can access the services of Chestnut Tree House?

We welcome referrals from either families or professionals. The children’s hospice team provides care and support for children and young people who have a life-shortening condition. As this may change over time we also have a yearly review assessment.

What support does the community service provide?

A Keyworker will be allocated to your family who will be able to help you access the services you require.  We can provide care in your own home or out enjoying activities in the community, giving families a well earned rest.

How many nights will I be allocated?

Each family is individual and after assessment a family will be informed of their individual allocation of nights. The details can be discussed with the bookings team on 01903 871804. Download a short break booking form below. This form can be completed on-line and emailed to Chestnut Tree House using the link on the top of the form.

Can I stay with my child/ young person?

The first overnight visit is always with a family carer staying over as well. A family room can be booked depending on availability. Parent(s) are responsible for the care of siblings during their stay; however, they will be included in all daily activity programmes.

Who will look after my child/young person?

Our aim is to provide a quality service at all times. To meet the diverse needs of the families that will use our services we have staff with a wide range of qualifications and experiences. During the day we provide an individualised service to ensure that extremely high standards of care are always maintained.

I already receive overnight respite care from another agency, will this be affected?

If a family already gets short breaks from other statutory agencies this does not affect the services available from Chestnut Tree House. However if a family uses the facilities of another hospice, they will be invited to visit Chestnut Tree House for an overnight stay to help them to decide which hospice is easier to access. If any short break nights are provided by another agency, this may affect the short breaks available at Chestnut Tree House.

I do not have my own transport so how will I get to Chestnut Tree House?

Please speak to your Social Worker or Community Nurse regarding transport needs.

Do I have to pay?

Chestnut Tree House is funded by charitable donations and there are no costs to pay, this includes all meals. Medical cover is also provided for your child/young person during their stay. Care is free.

How can Chestnut Tree House afford to provide these services?

Chestnut Tree House currently costs over £3.9 million  each year to run.

We receive very little government funding, less than 6p in every pound, and rely almost entirely on charitable donations, fundraising events and activities, legacies and trusts from individuals, businesses and organisations across East & West Sussex and SE Hampshire in order to keep our doors open and provide much-needed care and support for the children and their families.

Who is the Caldicott Guardian?

Cathy Stone, Clinical Director, is the Caldicott Guardian for Chestnut Tree House. She is responsible for protecting the confidentiality of the children and families’ information and enabling appropriate information sharing. If you require more information regarding this please contact ukcgcsecretariat@nhs.net


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